Savannah is my spunky, vivacious, beautiful 4-year-old. With regard to her heart, we’re in a holding pattern. Following her second surgery in Boston, she’s had a long, slow multi-year recovery that is led us to this point. Savannah’s mitral valve... Continue reading →

This is so very hard. The heaviness and reality of the situation is really weighing on us tonight. Earlier this evening, Dr. del Nido himself called us to review his surgical plan. I won’t go into the details of that... Continue reading →

With heterotaxy being a fairly rare disease, those affected by it tend to stay fairly well connected. Especially with the advent of social media, we can share our life experiences across various continents as they happen. While the support and... Continue reading →

I’m up late making some copies of Savannah’s heart cath and recent echo so they can be mailed to her Cardiologist in Cincinnati. I wanted to verify that the disc copied properly, so I launched the program and started to... Continue reading →