2015-04-06 10.49.07Savannah Joy Hensler – a lively little girl that has heterotaxy syndrome.  You can read more about these conditions on our diagnosis page. Savannah was born on Wednesday, November 20, 2013 to Ryan and Lori Hensler of Kokomo, Indiana.  Savannah is their first child.

This site was setup to share information about Baby Savannah’s condition, as well as help answer questions.  It is also meant to be a place for journaling, sharing, and coping for her parents.

If you have thoughts, prayers, words of encouragement, or even questions, we’d love to hear from you.  Feel free to comment on any of the blog posts.