2015-04-06 10.49.07Savannah Joy Hensler – a lively little girl that has heterotaxy syndrome.  You can read more about these conditions on our diagnosis page. Savannah was born on November 20, 2013, to Ryan and Lori Hensler of Kokomo, Indiana.  Savannah is their only child.

This site was set up to share information about Savannah’s condition, as well as help answer questions.  It is also meant to be a place for journaling, sharing, and coping for her parents.

If you have thoughts, prayers, words of encouragement, or even questions, we’d love to hear from you.  Feel free to comment on any of the blog posts.