It’s been a while since we’ve posted anything. That has not been out of forgetfulness or neglect. Simply, our lives continue to become crazier everyday.
In the last few weeks, plans have changed. Even Savannah’s diagnosis has changed. For all the details, you can read the updated diagnosis page, but I’ll give you the Reader’s Digest version. Going into our appointment in Cincinnati on October 16th, we thought Savannah’s issues were isolated to her heart. Sadly, this turned out to not be the case. Savannah has heterotaxy. This means that there are multiple organ systems affected by her illness. We now know that her spleen, liver, and bowels have been added to the list. This has, of course, added to our anguish.
Fast forwarding to the present, this coming week is going to be a tough week for a myriad of reasons. This week marks the three month anniversary of learning of Savannah’s illness. It also marks the beginning of a new phase. This week Lori is moving to Cincinnati to be near the hospital where Savannah will be delivered. This means Lori and I will be spending our weeks apart and only seeing each other on the weekends. This is going to be exceptionally difficult! Compounding this reality, I start physical therapy this week to treat some health issues I’ve been having.
All in all, these next few days are going to be tough. Very tough. Please continue to pray for us. We’re taking it all one day at a time. At this point, it’s really all we can do.