In recent days, there’s been a growing pit in my stomach. Why? Everything so it seems, including a 22 year old Continental 816R-5B. I won’t bore you with all the details, but there are certainly a few major concerns that involve Baby Savannah.
Having a baby is not a process we’ve been through before in our lives, so it’s scary. Add any complication to a pregnancy, and it gets super scary. Now toss in a set of complications so rare that there is minimal scientific research to guide me as a parent in determining a course of treatment. As Savannah’s Daddy, I want to make the best and most informed decision I can regarding her care, but even our insurance doesn’t have a standard of care for her condition. It’s scary!
As a husband and father, I recognize that I have a responsibility to support and be there for my wife and family. This introduces another set of conflicts between working and keeping the jobs that support them and spending time with them. I simply don’t know how I’ll manage my work responsibilities and my family responsibilities. I know we’ll figure it out, but it’s still scary recognizing that there’s a vast unknown there.
I think the not knowing is the worst part sometimes. Lori and I have been clinging to Proverbs 3:5-6 as we recognize that God has a plan. And yet, it’s not our plan. We’ve run into folks that have almost ignored the severity of Savannah’s condition by merely believing that God will heal her and all will be fine. Can God do that if he wants? Absolutely! We continue to pray for her complete healing, yet we recognize that God’s plan is not our plan. Just as Jesus prayed until he bled from his forehead to not die on the cross; ultimately, God’s plan was for him to die. In Savannah’s case, God’s plan may just be for us to travel to Boston to have her heart repaired.
Adding to the stress, our insurance has been as helpful as you might imagine for an insurance company. They don’t want to pay any claims that they don’t have to pay. This will leave us on the hook for some rather expensive tests and procedures. Add the fact that Savannah’s heart surgery will likely be done in Boston, MA next year, and the $600 that remains in our savings account simply won’t go very far.
We’ve crunched the numbers and are expecting this journey to cost us about $30,000 in the next year. This is an incredibly large number in the context of our annual household income. The journey from Birth to Boston is going to be enormous; and frankly, we need help! We need financial help.
In a time where nearly every business, organization, and church group is raising money for some cause, Savannah’s Heart is being added to the list. Lori and I are working on setting up the needed bank accounts and fundraising infrastructure, but we certainly can’t do it on our own. We’re not here to beg, but to simply state “there is a need.” I firmly believe that God will meet each and every one of our needs, including this rather large one.
Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. Matthew 7:7 NIV
Learn more on the How to Help page.