We want to thank you for taking an interest in Savannah’s story. If you’d like to learn more about Miss Savannah and what heterotaxy syndrome is, check out our About page for more information.
Having a child with special medical needs can be extremely taxing physically, emotionally, and financially. While it’s sometimes difficult for the community to help out in a physical sense, we’ve learned that many people are eager to help emotionally and even financially. We have setup this website to help facilitate this process.
It has been so encouraging to hear stories from other families who have been through difficult times with their own children. There’s a sense of comradery that develops when you get to talk with parents who have been right where you are. Sharing in this way truly helps us process some of the crazy emotions that accompany a journey such as this. If you’d like to reach out to us and share your story or simply share some encouraging words, you can contact us via email.
This site was not setup as a way to beg or seek pity, but rather to share Savannah’s story and share the very real needs facing our family. For those that can and want to help, we hope this site can help you do just that through our How To Help page.
We greatly appreciate your thoughts and prayers for Savannah and our family. Please check back from time to time to see what’s coming up next for Savannah’s Heart.
Ryan & Lori Hensler